Care Partner Resources
Finding the Support That’s Right for Them
Being a care partner is a tremendously important role and can lead to feelings of fulfillment.
At the same time, it can also be a daunting and sometimes frustrating process. As a care partner, you may play several roles in the care of your loved one. That makes it important to also stay on top of your own health and well-being. We’re here to help and so are many advocacy organizations.a
Some of the most important things to understand are your role as care partner, the value of and how to connect with other care partners and remembering to take care of yourself. Being a care partner can be both fulfilling and a stressful experience. We’ve compiled some resources designed to help you navigate this process.
Understand Your Role
It’s normal to feel uncertain of what is expected of you as a care partner. Multiple myeloma is a complex disease—just learning about multiple myeloma may feel a little intimidating. We’re here to help unpack some of the key issues and areas of responsibility you may face as a care partner. For example, your responsibilities may include:
Connect with Other Care Partners
Being a care partner can be a stressful job. It’s important to find ways to cope with your stress, and one way may be to hear from others like you who are in similar situations.9 Connecting with other care partners provides a safe space for you to share your experiences, feelings, and concerns and to learn from others who have been, or who currently are, in your shoes.
Linked below is a support group who can facilitate connections to other care partners if you would like to talk to others in your position about caring for a family member or friend with multiple myeloma:
Myeloma Coach: connects care partners with Myeloma Coaches, who are other care partners willing to share their experiences.
Your Own Well-being
In your role as a care partner, you may feel a fair amount of stress and anxiety. This is normal! Studies show that care partners often experience similar levels of stress as the patient they help take care of.10
It is important and necessary that you take care of your own well-being. This will help you be a strong, steady support system for your loved one.8
Below is a resource to help you take care of your own well-being:
*Oncopeptides does not endorse any particular group or service. Inclusion of other groups or services on this website does not indicate their endorsement of Oncopeptides or its products.