Jim participated in a cancer support group when he was first diagnosed and looked to online forums for support when he had his first relapse. Now he occasionally participates in webinars organized by his cancer support group, but is mostly dependent on his family and close friends for support. His daughter, Joy, is his primary care partner and does her own research on the most recent advances in the treatment of multiple myeloma. She often turns to the online advocacy community to find new ways to help her father and manage his care. Joy is balancing a full-time job while also caring for Jim and her mother. Joy also participates in a local support group to help her feel connected with other care partners who are going through similar experiences.
While Jim turns to his family and friends for support, there is also a robust, active multiple myeloma advocacy community—online and in-person. Visit our resources page for links to multiple myeloma advocacy organizations and support groups who may be able to help you on your journey.
If, like Joy, you are a care partner for someone living with multiple myeloma, the advocacy community may be a benefit to you. Visit our care partner page for resources to help you.