Mary is an active participant in the myeloma advocacy community. She recognized early on how important it would be to get connected with others who were going through the same journey. It was difficult for her to find other people living with multiple myeloma, and she found that patients with other forms of cancer did not fully understand the experiences of people living with multiple myeloma. Mary was regularly participating in a support group for people living with multiple myeloma in her city. Now she regularly goes online for virtual support—looking to online forums and Facebook groups for advice and to get questions answered by other people living with multiple myeloma.
Being an active member of the advocacy community can help you feel connected, like Mary. If you need help finding others who understand what you’re going through, visit our Resources page for organizations who can help you connect with other people living with multiple myeloma.