Sam was diagnosed with multiple myeloma 10 years ago after having routine bloodwork completed.
Sam is currently on his fifth treatment regimen after 4 relapses.
Sam seeks balance in all things in his life, including his treatment for multiple myeloma.
Sam emphasizes the importance of connectedness and learning from other people living with multiple myeloma.
Sam has not participated in a clinical trial, but he is open to doing so if the right opportunity presents itself.
Sam is hopeful to get to a period of response but is not so focused on achieving it that it takes priority over everything else.
Effective Date: November 30, 2020
How Do We Collect Your Personal Information?
You may visit our Website without telling us anything about yourself. If you contact us and choose to provide personally identifiable information, such as your name, address, telephone number or e-mail address (“Personal Information”), we will use that information and may share it with other companies and/or individuals (e.g., our partners, consultants, and service providers) for the purpose for which you submitted it to us, such as to respond to your inquiry or to provide you with information that you requested. For example, you may contact us through the “Contact” page of the Website for information about (i) employment opportunities, (ii) product information, (iii) media inquiries, or (iv) business development inquiries.
From time to time, our Website may be configured to collect domain information. This data enables us to become more familiar with which users visit our site, how often they visit and what parts of the site they visit most often. Oncopeptides uses this information to improve our Website. No personally identifiable information is gathered in this process. This information is collected automatically and requires no action on your part.
How Do We Use Your Personal Information?
Do We Disclose Any Personal Information to Outside Parties?
Disclosures to Third Parties Assisting In Our Operations. Oncopeptides may share your Personal Information under confidentiality agreements with other companies that work with, or on behalf of, Oncopeptides to provide products and services. These companies may use your Personal Information to assist Oncopeptides in its operations. However, these companies do not have any independent right to share this information.
Disclosures Under Special Circumstances. We may provide information about you to respond to subpoenas, court orders, legal process or governmental regulations, or to establish or exercise our legal rights or defend against legal claims. We believe it is necessary to share information in order to investigate, prevent or take action regarding illegal activities, suspected fraud, situations involving potential threats to the physical safety of any person, or as otherwise required by law. In such circumstances, we will take appropriate measures to ensure that the requester understands the sensitive nature of the Personal Information that they may receive.
Automatically Collected Information and Anonymous Information
Each time a Visitor comes to the Website, Oncopeptides collects some information to improve the overall quality of the Visitor’s online experience.
Aggregated Data. Oncopeptides collects aggregate queries for internal reporting and also counts, tracks, and aggregates the Visitor’s activity into Oncopeptides’ analysis of general traffic-flow at the Website. To these ends, Oncopeptides may merge information about you into aggregated group data. In some cases, Oncopeptides may remove personal identifiers from Personal Information and maintain it in aggregate form that may later be combined with other information to generate anonymous, aggregated statistical information. Such anonymous, group data may be shared on an aggregated basis with Oncopeptides’ affiliates, business partners, service providers and/or vendors; if it does so, Oncopeptides will not disclose your individual identity.
Web Server Logs and IP Addresses. An Internet Protocol (“IP”) address is a number that automatically identifies the computer or device you have used to access the Internet. The IP address enables our server to send you the web pages that you want to visit, and it may disclose the server owned by your Internet Service Provider. Oncopeptides may use IP addresses to conduct Website analyses and performance reviews and to administer the Website.
Cookies and Web Beacons. Periodically, some pages on this Website may use “cookies,” which are small files that the site places on your hard drive for identification purposes. These files are used for site registration and customization the next time you visit us. You should note that cookies cannot read data off of your hard drive. Your web browser may allow you to be notified when you are receiving a cookie, giving you the choice to accept it or not. You can also refuse all cookies by turning them off in your browser. By not accepting cookies, some pages may not fully function and you may not be able to access certain information on this Website. Information that we collect through cookies includes (i) the name and version of the operating system on the Visitor’s computer, (ii) the name and version of the Visitor’s browser, (iii) which page on the Site the Visitor is currently reading, as well as clicks and time spent on a particular page, (iv) if the Visitor was sent to the current page by some other page on the web, the universal resource locator (“URL”) of the referring web page, and (v) geolocation of the Visitor’s computer or device. Some of the Site’s web pages may use web beacons in conjunction with cookies to compile aggregate statistics about Site usage. A web beacon is an electronic image (also referred to as an “action tag,” “single-pixel,” or “clear GIF”) that is commonly used to track the traffic patterns of users from one web page to another in order to maximize web traffic flow and to otherwise analyze the effectiveness of the Website. Some web beacons may be unusable if you elect to reject their associated cookies.
By accessing and using the Website, you expressly consent to the storage of cookies, other local storage technologies, beacons or other information on your computer or devices. You also consent to the access of such cookies, local storage technologies, beacons and information by us.
The security of your data is very important to Oncopeptides. We have implemented appropriate security measures preventing your Personal Information from being accidentally lost, used or accessed in an unauthorized way, altered or disclosed. However, you should know that no web site operator, including Oncopeptides, can fully eliminate security risks associated with Personal Information. While Oncopeptides has endeavored to create a secure and reliable website for users, the confidentiality of any communication or material transmitted to/from the Website or via e-mail cannot be guaranteed.
Children’s Privacy Protection
Under Age 13
Oncopeptides understands the importance of protecting children’s privacy in the interactive online world. The Website is not designed for, or intentionally targeted at, children under 13 years of age. It is not our policy to intentionally collect or maintain information about anyone under the age of 13. No one under the age of 13 should submit any Personal Information to Oncopeptides or the Website.
Under Age 18
Minors under 18 years of age may have the Personal Information that they have provided to Oncopeptides through the Website deleted by sending an email to email@example.com requesting deletion. Please note that, while we make reasonable efforts to comply with such requests, deletion of your personal information does not ensure complete and comprehensive removal of that data from all systems.
Response to “Do Not Track” Signals
Some Internet browsers include the ability to transmit “Do Not Track” signals. Since uniform standards for “Do Not Track” signals have not yet been adopted, Oncopeptides does not process or respond to “Do Not Track” signals.
Updating Your Information
If you wish to stop receiving e-mails or other communications from us, or if you have submitted Personal Information through our Website and would like that information deleted from our records, please notify us at firstname.lastname@example.org. Please note that we reserve the right not to remove or amend information provided to us regarding an adverse drug event or any information that we are otherwise required to retain by law or regulation.
Links to Third Party Websites
For Additional Information
The following table sets forth the categories of personal information we have collected in the preceding 12 months, the source of that personal information, and how we have used and shared such personal information in the preceding 12 months.
Category of Personal Information Collected
Source of Information
Purpose for Collection
Categories of Recipients
Contact information: such as your name, address, email address, telephone numbers, or other contact information
To communicate with you, to send you catalogs, information, newsletters, promotional materials and other offerings from us or on behalf of our partners and affiliates, to offer a sweepstakes, contest or other promotion, when you contact us, when you request customer service or support, to complete your registration on our Site, to administer your account with us, and to provide you with offers that may be of interest to you
Our service providers, and our co-marketing partners, including select partners and affiliates that we believe may have or facilitate offers that may be of interest to you
Information you provide about a third party: if you send someone else a communication from the Site, we may collect information, such as that person’s name, telephone number, email, and/or shipping address
To deliver to or communicate with the person at the address which you have requested
Our service providers, and our co-marketing partners
Preference information: your marketing preferences, your account settings (including any default preferences), any preferences you have indicated, the types of services/offers that interest you, the areas of our Site that you have visited or ways that you interact with our Site
From you, from our website technology interaction with your browser/devices and cookies and other similar technologies tracking the pages you visit, the marketing messages you open and the links you follow
To enhance your online shopping experience, including as a way to recognize you and welcome you to the Site or App, to provide you with customized Site or App content, targeted offers from us or others, promotions and advertising on the Site or App, through other third party sites or apps, via email, text messages, or App push notifications that are offered by us or others that might be of interest to you
Our third party vendors and service providers that perform website analytic services for us or enable the customization of offers to you to improve your shopping experiences through our Site, an App or elsewhere
Communications: communications we have with you. Please note that we record calls to our customer service team.
To handle your requests, to contact you when necessary or requested, including responding to your questions and comments and providing customer support, and to obtain customer feedback and improve our customer service and customer shopping experience
Our service providers who assist us with customer service
Voluntary information: any voluntary information you provide us with, such as responses to surveys or competitions and social media account details
From you and your social media account provider
To know you better, make our communications with you more personal, learn and improve from your survey feedback, organize events and pick competition winners
Our service providers who administer surveys and promotions, and our co-marketing partners
Personalization: your journey online and how you use our Site and App, whether and when you open our emails and respond to our communications
From you, from our Site or App technology’s interaction with your browser or devices and cookies tracking the pages you visit
To improve our Site, products and services, customer service, and customer shopping experience
Our third party vendors and service providers that perform website analytic services for us or enable the customization of offers to you to improve your shopping or website experience for our Site, an App or elsewhere
Device information: IP address, internet provider, operating system and browser used, type of device (such as laptop or smart phone), device cookie settings and other device details (such as MAC address and geolocation), if you use our App and permit it to obtain your precise geolocation
From you and from our website or app technology’s interaction with your browser or devices
To make sure our website and app technology works properly with your device and make sure you can see and use our intended website and apps on the device you are using, for analytical and demographic purposes, and to provide offers that may be of interest to you
We also will use this information to protect the security and integrity of the Site and our business, such as by protecting against and preventing fraud, unauthorized transactions, and managing risk exposure, including by identifying potential hackers and other unauthorized users
Our service providers who help us with fraud protection, and third party vendors and service providers that perform website analytic services for us or enable more relevant offers to you on our Site, an App or elsewhere
Information automatically collected from your browser: when you use the Site, some data is automatically transferred from your browser to our server, including your browser type, operating system type or mobile device model, viewed webpages, links that are clicked, IP address, mobile device identifier or other unique identifier, sites or apps visited before coming to our Site or App, the amount of time you spend viewing or using the Site or App, the number of times you return, or other click-stream or site usage data, emails we send that you open, forward, or click through to our Site or App
From you and from our website or app technology’s interaction with your browser or devices
We will use this information in an aggregated non-specific format for analytical and demographic purposes
We also will use this information to protect the security or integrity of the Site and our business, such as by protecting against and preventing fraud, unauthorized transactions, and managing risk exposure, including by identifying potential hackers and other unauthorized users
Our third party vendors and service providers that perform website analytic services for us or enable the customization of offers to you to improve your shopping or website experience and the relevance of offers to you on our Site, an App or elsewhere
Suspected crime information: details of your identity, image, name and address, suspected or alleged thefts, fraud, assault or other criminal behavior
From crime and fraud prevention agencies, from you, witnesses, and from the police
To protect customers, the public and our business against risks and crime, to prevent loss, to prosecute crime, and to defend ourselves
Law enforcement and other governmental authorities in accordance with applicable law, and our professional advisors
Your California Privacy Rights
If you are a California resident, California law provides you with the following rights with respect to your personal information:
When you exercise these rights and submit a request to us, we must be able to verify your identity to a reasonable degree of certainty. In order to do so, you must provide the required information when completing the online request form or making a request through the above listed toll-free number. We will ask you to provide your contact information and an additional identifier based on your relationship with us. Before we process your request, we will match these data points with data points we currently maintain to verify your identity and your relationship with us.
Your exercise of these rights will have no adverse effect on the price and quality of our goods or services.
We will not sell your personal information.
Effective Date: November 30, 2020
This website, located at uniform resource locator www.myelomachannel.com (the “Website”), is provided by Oncopeptides, Inc. (“Oncopeptides,” “we,” “our,” or “us”) to the person accessing the Website (“you,” or “your”).
Oncopeptides does not represent or warrant that the functions contained in the Website will be uninterrupted or error-free, that the defects will be corrected, or that the Website or the server that makes the Website available are free of viruses or other harmful components. Oncopeptides does not make any warranties or representations regarding the use of the materials in the Website in terms of their correctness, accuracy, adequacy, usefulness, timeliness, reliability or otherwise. Some states do not permit limitations or exclusions on warranties, so the above limitations may not apply to you.
Oncopeptides does not endorse the content, or any products or services available, on such sites. Nonetheless, Oncopeptides seeks to protect the integrity of its website and the links placed upon it and therefore requests any feedback on not only this Website, but for sites it links to as well (including if a specific link does not work).
All content included on the Website, such as text, graphics, logos, button icons, images, audio clips, digital downloads, data compilations, and software, is the property of Oncopeptides or its content suppliers and protected by United States and international copyright laws. The compilation of all content on the Website is the exclusive property of Oncopeptides and protected by United States and international copyright laws. All software used on the Website is the property of Oncopeptides or its software suppliers and protected by United States and international copyright laws. You agree not to change or delete any proprietary notices from materials printed or downloaded from the Website.
Oncopeptides does not authorize the downloading or exportation of any software or technical data from the Website to any jurisdiction prohibited by the United States Export Control Laws.
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2. Cancer stat facts: myeloma. National Cancer Institute. Accessed November 10, 2020. https://seer.cancer.gov/statfacts/html/mulmy.html
3. Sonneveld P. Management of multiple myeloma in the relapsed/refractory patient. Hematology Am Soc Hematol Educ Program. 2017;2017(1):508-517. doi:10.1182/asheducation-2017.1.508
4. Mikhael J. Treatment options for triple-class refractory multiple myeloma. Clin Lymphoma Myeloma Leuk. 2019;S2152-2650(19):32008.
5. Nijhof IS, et al. Current and new therapeutic strategies for relapsed and refractory multiple myeloma: an update. Drugs. 2018;78(1):19-37. doi: 10.1007/s40265-017-0841-y
6. Side effects of multiple myeloma treatment. WebMD. Accessed November 10, 2020. https://www.webmd.com/cancer/multiple-myeloma/features/multiple-myeloma-treatment-side-effects
7. Myeloma Specialist Directory. Myeloma Crowd. Accessed November 10, 2020. https://myelomacrowd.org/myeloma-directory
8. Multiple Myeloma Caregiver Guide, 2019. Multiple Myeloma Research Foundation. Accessed November 5, 2020. https://themmrf.org/wp-content/uploads/2020/05/MMRF-Caregiver.pdf
9. Remember your needs as caregiver. Cancer Support Community. Accessed November 5, 2020. https://www.cancersupportcommunity.org/article/remember-your-needs-caregiver
10. Woźniak K, Iżycki D. Cancer: a family at risk. Prz Menopauzlny. 2014;13(4):253-261. doi:10.5114/pm.2014.45002
11. About multiple myeloma. American Cancer Society. Accessed November 10, 2020. https://www.cancer.org/content/dam/CRC/PDF/Public/8738.00.pdf
12. Multiple myeloma disease overview. Multiple Myeloma Research Foundation. Accessed November 10, 2020. https://www.themmrf.org/wp-content/uploads/MMRF_Disease_Overview.pdf
13. Can multiple myeloma be found early? American Cancer Society. Accessed November 10, 2020. https://www.cancer.org/cancer/multiple-myeloma/detection-diagnosis-staging/detection.html
14. Tests to find multiple myeloma. American Cancer Society. Accessed November 10, 2020. https://www.cancer.org/cancer/multiple-myeloma/detection-diagnosis-staging/testing.html